Have you ever made your children go to a party they didn’t
want to go to because you thought it would be good for them?
I was at a birthday party for one of my son’s classmates on
Saturday. My son is 10 and is on the
autistic spectrum. He has a wonderful
school and I love the programs that they have available. His class is specifically designed for kids
on the spectrum. His teachers and
principles even the lunch ladies are wonderful.
I remember the first day driving up to Reagan Elementary praying that we
would find a good school for him. We had
looked at private schools, even homeschooled him for a year, which just wasn’t
working. When we arrived at Reagan,
there was an amazing sense of calm and warmth.
I knew we were in the right place.
Coming to the diagnosis of autism was not easy. His dad and I were both in denial and no one
wants to admit that their child is not “normal”. Especially when on the outside he doesn’t
appear to have any issues. The brain
wiring is simply different and requires some special adaptations if you want to
be successful. I too am on the autistic
spectrum. I wish that I would have had some
of those special services and adaptations.
It would have made my life so much easier growing up. My son is so funny. He tells me that the kids in his class are
“different”. He notices that things are
different. I tell him that it’s ok. We are all different. And he is doing great in his special programs
and liking school which is amazing and he used to hate going to school.
So we are at one of his classmates party on Saturday and
it’s a bowling party. He was not real
excited to go as he would have been happier to stay home and play on his
computer. That’s part of the autistic
spectrum as well, lack in social connectivity and desire to be around
people. But sometimes he gets bored and
wants a friend to play with so I thought it would be a good opportunity for me
to meet some of the other kids and parents so that we might have some friends
for him to reach out to when he gets bored.
He agreed to go. My mistake. You know it’s funny we want opportunities for
our children that are incongruent with what they want and we force things on
them, “for their own good” that often times just don’t make sense. Autistic spectrum people don’t like social
gatherings and being around a lot of people just over stimulates the brain and
can be every disturbing feeling from uncomfortable to painful. I have come to know that the autistic
spectrum brain is wonderful. It makes
genius development in some areas, while some areas are underdeveloped like
social connections. And then there is
the area that seems to get hyperstimulated from sights and sounds. It can be painful to some extent. And then you force the situations and the
kids get hyperstimulated and then have “melt-downs”. Which happened on Saturday. He had a total melt down and came
unglued. It appeared to be from not
being able to get a strike bowling while some of the other kids were but the
bigger issue was just the over stimulation and then there was all the sugar
(from the birthday cake) and eating foods that he is highly sensitive like gluten on the pizza.
We went to another party on Sunday that he was actually
quite excited about. I was nervous after
Saturday’s “come apart” but he wanted to go because it was at a remote control
car place. It was interesting because
all of the kids were from his class at both parties. All on the spectrum and it was a big party
with a live DJ and music and lots of junk food and sodas. I watched as several of the kids had melt
downs and most of them walked around with their fingers in their ears to limit
the stimulation.
I talked to another mom that has two kids on the
spectrum. It seems as if being on the
spectrum is really becoming the “new norm”.
I have studied the spectrum quite a bit since it is so relative in my
life.
The hormone oxytocin is our social hormone that is known as
the “love hormone” it calms anxiety and is the hormone of birth that allows the
mom to connect with the baby and has a key role in the breast feeding milk let
down process. It balances out cortisol
in the stress response. Interestingly
when pregnancies are induced which a lot of them are these days, Pitocin is
used to induce the pregnancy process. Pitocin is a chemical analog of oxytocin
and then thought is that this bathes the brain and saturates the receptors at a
critical time. With the receptors
saturated the brain development is delayed in areas of social
connectivity. When a baby doesn’t
develop socially at the right time some areas of the brain become
hypersensitive and soothing and calming can be the first deficit seen. Colicky and cranky babies we call them. My son was so hard to soothe. It was quite stressful.
It’s interesting that my own ability to soothe myself is
often hard and though the trade off is extreme intelligence in some areas
knowing the root of the brain discrepancies can be very helpful. I don’t like crowds and places that are prone
to over stimulate me. It’s funny, I like
the thought of going to places like theme parks but then I get there and it’s
quite miserable with all the hyper stimulating sights sounds and smells.
I have done a lot of research on methyl-folate and the
autistic brain and development. It is
critical to a healthy brain and with all the chemicals and toxins we are
exposed to it is critical to supplement with this essential B vitamin. To have a healthy pregnancy and baby I
believe it is one of the most important things to take. Folic acid is not the same thing and if you
have a genetic defect called MTHFR (methyl-tetra-hydro-folate reductase
deficiency) taking folic acid can make the issues worse. Getting tested for MTHFR can be very
important in having a healthy mom and baby and this genetic defect can be found
with diabetes, obesity, ADHD and sleep and hormone issues. In fact taking folic acid which is believed
to be the cheap alternative to folate can accumulate in people and cause build
up of homocysteine an inflammatory substance that can predispose to heart
attacks and stroke. In a mom who is
trying to get pregnant can cause miscarriages and hormone imbalance.
My thoughts on all of this.
Educate yourself about methyl-folate and its role in the body. If you are a mom trying to get pregnant be
aware that being induced may sound like a good idea but avoid it if at all
possible and supplement with methyl-folate.
If you are on the autistic spectrum or have a child with
some degree of hypersensitivity, ADHD or other issues know that you are not
alone and it’s not your fault or the child’s.
Honor their feelings and if they don’t want to go into social situations
don’t let your own feelings about what they should and shouldn’t experience
cloud your judgement of what they need.
Love your children and let go of the fear of what other’s think or how
they perceive your situation. Time is
short with them as children and the only regrets you will have are the regrets
of forcing them into situations that weren’t comfortable.
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